AS resources
Verified links to patient organisations, clinical guidelines, and online communities. These are the places I would point a friend who had just been diagnosed.
Patient organisations by country
United States
Spondylitis Association of AmericaThe leading AS patient organisation in the US - advocacy, education, research funding.
Arthritis FoundationAS section with treatment overviews and patient resources.
United Kingdom
National Axial Spondyloarthritis Society (NASS)The UK's leading charity for axial spondyloarthritis - includes AS and nr-axSpA.
Arthritis UKUK charity with practical AS guides and a helpline.
Australia
Arthritis AustraliaNational patient advocacy and education organisation.
CreakyJoints AustraliaPatient education and advocacy for Australians living with arthritis.
New Zealand
Arthritis New ZealandSupports people living with arthritis in NZ - AS included.
PharmacNZ government agency that funds medications - check biologic access criteria here.
Canada
Canadian Spondylitis AssociationPatient organisation for Canadians with AS and related conditions.
The Arthritis Society CanadaNational charity for arthritis awareness and support.
Clinical guidelines
ASAS Classification CriteriaAssessment of SpondyloArthritis international Society - sets the diagnostic and classification criteria.
ACR/SPARTAN Treatment GuidelinesUS treatment guidelines for axial spondyloarthritis.
Online communities
r/ankylosingspondylitisActive Reddit community - lived experience, questions, support. Over 40,000 members.
- r/SpAcommunity
Broader spondyloarthritis community including PsA, nr-axSpA, and AS.
Links are reviewed periodically. If you find a broken link or want to suggest an organisation, let me know.